Hereditary Amyloidosis (hATTR)
Awareness and Early Detection
CHAPTER 4 – IT TAKES A TEAM
OUR TEAMMATES
Here you will find everything you need to know about what is happening in the world of support and awareness for Amyloidosis patients, care givers and those who have lost some one to this insidious disease.
The EveryLife Foundation for Rare Diseases is powered by the rare disease community to improve health outcomes by driving change through evidence-based policy, leading science-driven policy and regulatory research, activating the community to advocate for their rights and needs, and strengthening the rare disease community.
ARC provides support, information and resources, empowering patients and caregivers to access the best care possible.
oneAMYLOIDOSISvoice was created to transform the health of those impacted by amyloidosis through a collaborative digital platform that provides greater disease knowledge, emotional support and empowerment.
Provide research grants for all types of systemic amyloidosis Raising awareness in the medical field for an earlier diagnosis. Educating medical professionals through our Grand Rounds program and attendance at medical conferences. Empowering patients through our comprehensive range of services, including accurate up to date information.
NORTHERN CALIFORNIA
AMYLOIDOSIS SUPPORT GROUP
Here to help patients, caregivers, family members and loved ones. Amyloidosis can be a challenging and difficult disease but it is a disease that can be treated and managed. Our group includes newly diagnosed patients as well as patients who were diagnosed more than 15 years ago.
The Kansas Newborn Screening Program, a collaboration between public health, hospitals, providers, and the parents of newborns, has provided essential screenings at no cost to families since 1965. Community HealthCare System, or CHCS, is among the Kansas hospitals being recognized for meeting or exceeding screening goals.
At California Adventure Camps, we believe in the transformative power of enrichment programs that inspire and elevate young minds. As a leader in specialized camp programs, we provide dynamic before-school, after-school, and expanded learning opportunities that go beyond the ordinary. Partnering with world-class talents, we deliver experiences that foster creativity, physical fitness, and personal growth, all while making a lasting impact on the communities we serve.
