Welcome to Still Speaking – Notes from the Heart
My wife and I have been married for 42 years.
Through every high and low, every chapter of our lives, Liz and I have stood together—strong, steady, and faithful. We’ve raised 11 children, and today, we are blessed beyond words with 26 grandchildren. That number alone speaks volumes—but what it doesn’t say is how we’ve lived, what we’ve learned, and why we’ve decided to speak up now.
This blog isn’t just a collection of thoughts. It’s a reflection of the life we’ve built—and the one we’re still building.
Over the last few years, our lives took a turn we never expected when I was diagnosed with hereditary ATTR amyloidosis, a rare disease that often goes undiagnosed and misunderstood. It affects 1 out of 25 African Americans/ At first, it felt like everything stood still. But in that stillness, something powerful was born—a purpose, a mission, and a voice we couldn’t ignore. We needed to share our story.
We started the Still 4 Life Foundation because we believe stillness isn’t weakness—it’s awareness. And from that awareness comes action, advocacy, and strength.
Here in Still Speaking, we’ll share:
• Our health and wellness journey—how we’re navigating this diagnosis as a family
• What it’s like to live with amyloidosis
• Tools, encouragement, and resources for others facing rare diseases
We’re not doctors. We’re not perfect. We’re just two people—parents, grandparents, teammates—still here, still speaking, and still for life.
Thanks for walking with us. We’re just getting started.