Our Mission:
We’re raising awareness about hereditary ATTR amyloidosis, a rare genetic disease that affects 1 in 25 African Americans. This disease is silent and can cause heart failure, nerve damage, and other serious health problems. But with early detection and education, we can extend lives.
Our Game Plan:
Educate the community – Not through empty words (Talking Loud But Ain’t Saying Nothing) but through powerful positive discussions, talks (individuals story telling), social media, documentary, and events. Partner with churches, schools, and community centers – to reach people where they are. Encourage early testing – for anyone with a family history or symptoms.
“Extending Your Shelf Life – One Life at a Time.”
Why the A-Team?
This team isn’t based on athletic skills or intelligence. It’s based on genetics—a silent risk carried in the DNA. These team members are using their stories to shine a light on this disease and push for early testing and treatment.
Awareness – Knowing something is happening, like signs or problems with your health.
Assessment – Checking for problems early, like going to the doctor or answering questions about your health.
Alertness – Paying close attention to your body and any changes you notice.
Analysis – Looking at the facts or information to figure out if something is wrong.
Anticipation – Being ready or prepared for a possible problem before it gets worse.
Appraisal – Taking a close look at how things are, like how you feel or what the doctor tells you.
Advocacy – Speaking up for yourself or others to make sure people get help and support. Supporting early detection through education or action.
Acumen – Being smart and noticing when something doesn’t seem right with your body.
